By John Keady, Bob Woods, Diane Seddon

Households usually strive against with the choice to maneuver anyone with dementia right into a care domestic. This determination should be hugely charged and emotional, with emotions of loss, unhappiness and guilt mostly skilled, and constructing a very good dating among the family members and the care house is no longer a simple topic. during this available consultant, the authors take person-centred dementia care a breakthrough by means of outlining ways that care houses may help make households companions within the worrying procedure. utilizing case examples, quotations and research-based facts, the authors supply useful suggestion and stable perform instructions for helping relations who decide to be keen on the care of individuals with dementia dwelling in a care domestic, in addition to highlighting the price of this involvement. The booklet is written in an easy-to-read kind and accommodates important positive factors resembling checklists for reviewing present practices and summaries of key issues for every bankruptcy. a useful source for care domestic managers and employees, this ebook may also be precious for households of individuals with dementia, in addition to for college kids and researchers drawn to dementia care perform. it really is for residential carers, care managers, running shoes and staff leaders, and households of individuals with dementia.

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Sometimes it seemed the staff had two patients instead of one to deal with, when the relative arrived. Some were said to be overly critical, always finding something about which to complain, perhaps not understanding the staff ’s attempts to promote as much independence and autonomy as possible for the resident. In Ireland, it was felt that one factor in staff burn-out was the lack of appreciation shown by relatives. Staff felt some relatives did not visit enough; they could understand that it can be very distressing for people to see their relative in a nursing home at such an advanced stage of the disease.

It was also reflected in their tacit attempts to monitor the care provided: Ensuring a homely feeling and helping her to see it as her home from home. Relatives’ early attempts to come to terms with the new caregiving arrangements centred upon taking one day at a time and talking things through: The only way I got through was to take things one step at a time. Take each day as it came and not think too far ahead. They drew attention to the lack of emotional support available through statutory and independent-sector agencies, and they relied heavily upon their family and friends to help them come to terms with their guilt: My daughter was very good.

Irrespective of the type of facility, families clearly reflected the view that physical needs were met but often at the expense of psycho-social needs. Relationship and communication with staff Most relatives from the UK found staff to be helpful, reassuring and informative at the time of admission. They were made to feel they could continue to be involved in caregiving. Families reported wanting to know what is happening with their relative as it makes them feel they are still part of their relative’s life.

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