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Extra resources for The Official Patient's Sourcebook on Hairy Cell Leukemia
What Are a Patient’s Rights in a Clinical Trial? If you are eligible for a clinical trial, you will be given information to help you decide whether or not you want to participate. As a patient, you have the right to: · Information on all known risks and benefits of the treatments in the study. · Know how the researchers plan to carry out the study, for how long, and where. · Know what is expected of you. · Know any costs involved for you or your insurance provider. · Know before any of your medical or personal information is shared with other researchers involved in the clinical trial.
CIS information specialists answer calls in English and Spanish. htm. Seeking Guidance 29 deaf and hard of hearing callers through the toll-free TTY number (1–800– 332–8615). CIS staff have access to comprehensive, accurate information from the NCI on a range of cancer topics, including the most recent advances in cancer treatment. They take as much time as each caller needs, provide thorough and personalized attention, and keep all calls confidential. m. m. Eastern time, Monday through Friday.
Whether or not a new treatment will work cannot be known ahead of time. There is always a chance that a new treatment may not work better than a standard treatment. There is also the possibility that it may be harmful. The treatment you receive may cause side effects that are serious enough to require medical attention. How Is Patient Safety Protected? Clinical trials can raise fears of the unknown. Understanding the safeguards that protect patients can ease some of these fears. Before a clinical trial begins, researchers must get approval from their hospital’s Institutional Review Board (IRB), an advisory group that makes sure a clinical trial is designed to protect patient safety.
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